Books
Belonging by Toko-pa Turner
Decode Your Fatigue by Alex Howard
Healing Dreams by Marc Ian Barasch
No Bad Parts by Richard Schwartz
Radical Acceptance by Tara Brach
The Artist’s Way by Julia Cameron
The Body Keeps the Score by Bessel Van der Kolk
The Healing Path by Marc Ian Barasch
The Myth of Normal by Gabor Mate
Waking the Tiger by Stephen Levine
What it Takes to Heal by Prentis Hemphill
ME/CFS Resources
The Myalgic Encephalomyelitis Action Network is a worldwide ME/CFS patient advocacy group with a focus on empowering patients to take action to improve the status of research and clinical care through nationally organized efforts with the support of local affiliate groups in countries around the world.
A project founded by The MEAction Network, crowd-sourcing a knowledge base on the history, science and medicine of ME/CFS and related diseases.
Works to improve access to informed health care for individuals with ME/CFS, Long COVID, and fibromyalgia through medical education, research initiatives, and resources.
A non-profit organization that serves as a catalyst for critical research into diagnostics, treatments, and cures for ME/CFS, Long Covid and other infection-associated chronic conditions and illnesses (IACCIs).
U.S. ME/CFS Clinician Coalition
Aims to improve clinical care for patients with ME/CFS by advancing best clinical practices, providing education for the medical community, expanding the pool of medical providers with strong expertise in ME/CFS, and providing clinical insights for researchers.
The world’s largest ME/CFS study. While the results still need to be peer-reviewed, the groundbreaking results have been publicly published, revealing that ME/CFS is partly caused by genes related to the immune and nervous systems.
Clinical Care Guide for Managing ME/CFS, Long COVID, and IACCs
Guide developed by the Bateman Horne Center to serve as a practical resource for healthcare professionals seeking to better understand, diagnose, and manage ME/CFS, Long COVID, and other infection-associated chronic conditions (IACCs).
Resource created by Stanford University and The Solve ME/CFS Initiative. It is a workbook style toolkit for avoiding post-exertional malaise, a hallmark symptom of ME/CFS.
A critically-acclaimed documentary about living with ME/CFS, from the point of view of a patient.
Additional Resources
This is an incredible blog focused on supporting those living with disability, including the difficult and frustrating disability application process. They offer a wealth of free resources, including those specifically for people with chronic fatigue-related conditions, such as ME/CFS, fibromyalgia, and so on.
Website, resources, and an app to help you learn and use the Emotional Freedom Technique (EFT). This completely free technique can be done on your own, and is incredibly valuable for soothing and reprogramming the nervous system, a vital component of healing.
A website to screen for toxins in your products.
An evidence-based website with basic information on nutrition and supplements, without industry ties.
International Academy of Biological Dentistry & Medicine
Use this directory to find a biological dentist who can help you uncover oral contributors to your illness. Make sure to interview them and see if they are a good fit, and well-versed in the issues you believe need to be addressed.
The Institute for Functional Medicine
Use this directory to find a functional medicine practitioner who is trained to find and treat the root causes of your condition, unlike most doctors in the allopathic care model. Make sure to take advantage of a free consultation call so you can assess if they are well-versed in your specific conditions/symptoms, and feel like a good fit.
A naturopath, Traditional Chinese Medicine (TCM) practitioner, Ayurvedic practitioner, or holistic/integrative practitioner may also be a great fit for you, and acupuncturists, herbalists, therapists, somatic healers, chiropractors, nutritionists, coaches, and others can also be valuable members of your team! While many of these modalities are expensive and not covered by insurance, there can be affordable options – such as community acupuncture. For more support in finding the right health professional(s) for you, building a supportive care team, and stretching limited resources, consider booking a 1:1 session. Start with a free discovery call:
If you have FREE resources relevant to those with complex chronic illness, I would love to hear them! Please email me at bethanyschmid@gmail.com.
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